Thursday, January 3, 2013

Check the Manual, Check the Playbook

Several years ago Linda Fisher wrote a post on hearing Coach Broyles and his family. The Coach has a Playbook for Alzheimer's Caregivers.See  http://earlyonset.blogspot.com/2010/04/bring-past-to-presentcoach-broyles.html

That playbook looked like a book I needed to read. Fortunately Karen later sent it to me. Karen's mom passes away from Alzheimer's and this book had helped her. We met when I started writing on her blog and she wrote here.

Playbook. Linda writes that the family treat each repeat question with respect as if it were the first question. Yep, I do that. I let my husband initiate conversations so I don't frustrate him. I prayed last night because it was my turn to pray on even days. Then he asked me to pray again because he forgot that I had. This was my precious time to tell our LORD new praise and requests even though I had prayed several minutes ago. We always hold hands when we pray at night.  I am writing my own playbook on what works with him.

Romans 8:1,9,16,17; Colossians 1:9,24; 2 Corinthians 1:5-7, 9:8; Psalm 41, 31:9-13; Leviticus 19:32; John 14:17, 16:13; Galatians 4:6; 1 Corinthians 3:16, 6:19; 2 Timothy 1:14; and Ephesians 1:17 are some of the verses highlighted in this book.

Here is the poem from Coach Broyles Playbook for Alzheimer’s Caregivers (author unknown)

Do not ask me to remember.
Don't try to make me understand.
Let me rest and know you're with me.
Kiss my cheek and hold my hand.

I'm confused beyond your concept.
I am sad and sick and lost.
All I know is that I need you.
To be with me at all cost.

Do not lose your patience with me.
Do not scold or curse or cry.
I can't help the way I'm acting.
Can't be different 'though I try.

Just remember that I need you.
That the best of me is gone.
Please don't fail to stand beside me.
Love me 'til my life is done.

I will be there, sweetheart!

3 comments:

  1. Beautiful. Just beautiful.

    One of the marvelous things (am I allowed to say that) about being somewhat forgetful myself was when my father-in-law used to tell me the same joke over & over. My husband (who had a harder time dealing with his dementia) would look at me like I was crazy every time I laughed like a loon at the same punchline. In some small way, I felt it was good that I could never remember the joke and how wonderful it was that he still could.

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  2. Such a sweet poem... it makes me laugh and cry...and that's the way it goes with Alzheimer's. We have to take one step/day at a time.
    Hugs and prayers,

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  3. I have forgotten this poam. Thanks for reminding me. Wonderful post. So glad to see my freinds again you, your post and there comments on your post. Hi all.

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