Showing posts with label mixed emotions. Show all posts
Showing posts with label mixed emotions. Show all posts

Tuesday, June 24, 2014

Precious Last Days


Photo by Chris Noren in Hawaii
Last Thursday, June 19th, the Hospice nurse read to me from the booklet. She saw the signs that the end-of-life was approaching and of course the Hospice policy is to make death as comfortable and humane as possible. He was dying, so gaunt, but the morphine made it so he wasn't in pain. Please understand this.  

It was time for a relaxing medicine and for morphine--every four hours. My neighbor, Kenny, who has seen deaths in his extended family in the past month, helped, giving those first doses to my husband--even coming back every four hours through the night. Another hospice nurse came out and he gave me further instructions on the medicine such as how to fill the syringes. I practiced this. After that nurse gave me confidence to administer the meds, I did--a very, very hard task for me.

Friday morning, June 20, the Hospice Home Care Aide came as usual. She is very competent but I also helped her. It helped me cry. He was awake with the bed bath and changing of the sheets and so I told my husband I loved him, Jesus loves him and there is a place in heaven, a home that Jesus has prepared for him there. He mumbled/mouthed that me loved me. This made me cry again because I was happy he communicated. My husband has been made comfortable.

Monday morning, June 23, the every four-hour alarm on my iPhone went off at 5:30 am to give hubby his medicines. Only when I woke up there was no breath and no pulse. I gave the medicine anyway just in case.  But again a warm body but no breath and no pulse. Then I called the Aqua Team of Hospice and within the hour a Hospice chaplain and a nurse came out to the house.

The nurse preformed various tasks including calling the funeral director. The chaplain let me talk. He also read from John 14:1-6 where Jesus said we should not be troubled because he was preparing a home for us in heaven. Thomas questioned this, even as every loved one questions death of a spouse.

Thomas: How can we know the way? 

How can I go through his pain of widowhood again? How can I too go to my Father in heaven?

Jesus: I am the way, and the truth, and the life; no one comes to the Father, but by me.

This is the essential good news of the Gospel. I have always known that since a child who at seven years of age remembers asking Jesus to be my Savior—my way to God. But it occurred to me that Jesus is the way to navigate the choppy waters of widowhood. His truth is in Scripture. There is life that will continue and one day I will be reunited with all my departed loved ones in heaven.

Then out of the Companion to the Lutheran Book of Worship he read this prayer:
Into your hands, O merciful Savior, we comment your servant, [my husband’s name]. Acknowledge, we humbly beseech you, a sheep of your own fold, a lamb of your own flock, a sinner of your own redeeming. Receive him into the arms of your mercy, into the blessed rest of everlasting peace, and into the glorious company of the saints in light. Amen.

After some time the black-suited funeral directors pulled up and put my husband on a gurney and brought him out of the bedroom. I had been carrying dog Ziggy, and the men stopped by Ziggy and myself. Ziggy licked my husband’s face and I kissed his cold face. Then before us they covered his head with the rest of the red cloth and brought him outside to a black van while I sobbed healing sobs. At midday the regular Hospice nurse came; she hadn’t heard the news and we hugged and grieved together. The aide who had come most morning heard the news and she came also later in the day to be with me and we grieved together. Such a wonderful team—those Aqua people. They let my husband slip gently into the arms of Jesus. He was ready.  

So how am I able to cope thirty-six hours later? Prayers of you all and Scripture.  For example, four women and I have been sending each other Scripture each day.  Georgene who regularly comments on this blog started it last year and then Betty came along. Soon there were two more, Pokeberry Mary and Kim. Here is a sample of Scripture I have been treasuring that I am meditating on now.

   When I am overwhelmed, you alone know the way I should turn. Psalm 142:3 NLT

   Dear friends, don’t be surprised at the fiery trials you are going through, as if something strange were happening to you. Instead, be very glad—for these trials make you partners with Christ in his suffering, so that you will have the wonderful joy of seeing his glory when it is revealed to all the world. 1 Peter 4:12-13 NLT

   You saw me before I was born. Every day of my life was recorded in your book. Every moment was laid out before a single day had passed. Psalm 139:16 NLT 

In the fourteen years of marriage with my now deceased husband, about half of them were about Alzheimer's. This blog grew along with my faith during those 7 years. I am grateful for those years. I am grateful that my husband is with the LORD now. As a Christian I have that assurance also according to 2 Corinthians 5:8 that to be absent from the body is to be present with the LORD.

Wanna Hang Out?
So now I am about to change my marital status on Facebook to “widow”, help prepare the memorial service program and bio, and begin to do grief work. I have been a widow once before and know Scripture that speaks to widowhood and those promises of our LORD to protect me.

Last night I hung out with a family from my church thoroughly enjoying the parents and the four children. I just asked them if I could come over. The youngest wore this T-shirt. 


Hanging with people and hanging with the LORD is how I will cope and heal. Scripture says he puts widows in families—even the family of the local church.

Friday, January 18, 2013

Meltdown and Meditation

On rare occasions hubby gets really mad and then forgets about it the next day.  He even had me in tears by the end of Tuesday. His meltdown on Tuesday was about not wanting to go with Jake to the Senior Center. I could  also tell you in vivid details about the other two meltdowns with me since dementia came. One I wrote about here.

Anger goes with the territory of the loved one with dementia. I put a distress signal up on Facebook. The result was that my husband's ex called me and wanted to counsel me and I talked with her in another room away from my husband. It was so sweet that she called. She told me my husband used to be angry a lot in their 25 years of marriage. So maybe I can't blame it all on the Alzheimer's. It is the sin nature that we all have. When I came out of the room after the phone call to make dinner, my husband asked me if I were having an affair and I answered of course not.

Anger is in my husband.  I know this when we are in the car and I am driving. The traffic makes him so impatient. He swears--didn't when I married him.

Anger is in me. The students I substituted for on Thursday were difficult. My authority as the adult in charge meant nothing. I had two students fight in homeroom, and then the last period there was a theft of property and much rumbling. Today I go to an inner city school where my raps and good reputation do not work.  It seems the administrators do not handle problems at the school I am going to today. LORD, help me be the adult today when I substitute. This is the last day of midterms here and everyone is stressed.

The cold of winter is finally in Florida. Last night I started getting angry and told hubby that it hurt me when he promises things and doesn't do them. This was part of my distressed call on FB. (I hate it when others kvetch on FB, but I did it myself before I took my Facebook cry of distress off.) I yelled at hubby last night--very uncharacteristic of me.

Can't you remember to check your clipboard
and do the things on there?!

He had  forgotten his lunch again, and forgotten his shower. Furthermore he asked me to remind him to mow the lawn before the cold spell that we now have. Day after day he has forgotten to mow at least part of the lawn and gets angry when I suggest we hire someone to mow our 3/4 acre of grass. Can I ever get it through my head that with his dementia he can't remember? I hate the NAGGING WIFE I am.

Can I take my shower in the morning? he asked.

You will forget in the morning I snapped. He took his shower last night. He also put a dish in the dishwasher--something I can't remember he has ever done in our 13 years of marriage. I do not gloat at my short-lived victory, because it's me with the sin problem again.

"Get rid of all bitterness, rage anger, harsh words, and slander, as well as all types of evil behavior. Instead be kind to each other, tenderhearted, forgiving one another, just as God through Christ has forgiven you." Ephesians 4:31, 32

Thank you, Lord Jesus Christ.  Forgive MY anger. Thanks that you came to forgive me and help me. LORD, I need you. Help me be joyful today. In Jesus name, Amen.


Wednesday, September 8, 2010

Day After the Diagnosis

I was able to cry! I thought about how sweet and loving my husband is on the way home from substitute teaching today and an ocean of tears came--right in downtown Plant City--miles from that ocean. I put my glasses on when I came in the door so he wouldn't see I had been crying and gave him a big smile--so glad to see him.

I guess I had been hoping for Vascular Dementia instead of Alzheimer's, but not both. He had been helped by Namenda and Exelon and coconut oil, slowing down the progress of the disease which may have even started fifteen years ago according to Nancy! Certainly we are fortunate to have such a professional evaluation from that Alzheimer's Institute close by. I had thought that the first MRI in December of 2008 did not show Alzheimer's officially, so I had been hoping against hope all this time. Those scores only meant he learned to take those tests and raise his points from 22 to 25.

Thanks so much to you who have sent me your expressions of prayer and concern. One person I heard from is my Alabama brother! He and his wife are coming down this weekend! This is just what the doctor ordered for the caregiver. That brother and his wife have been there for me countless times in the past.

Yes, my husband did hear the diagnosis yesterday and he was told point blank that he can't drive. An appointment is now set for October 13th to assess his driving skills. He is mad about this. "Of course I can drive," he says. I reminded him about being sued for our home if he were in an accident because of his Mixed Dementias, and this reasoning didn't make sense to him. Usually he doesn't drive when I am gone anyway--just when we do things together.

12:45 Thursday AM.  I am up in the middle of the night not sleeping. I get his car key out of his jeans.