The Widow's Christmas

Christmas used to be very Swedish for me--Swedish food and decorations as started by my 100 % Swedish mother. Dad was 1/2 Swedish and 1/2 Norwegian so we could expect things like Potatiskorv (potato sausage) that Mom would get from a delicatessen in California. Pepparkakor cookies were always a delight at Christmas. There were other things that my brothers and I sort of were forced to eat, but didn't like.

However, the Swedish decorations I grew up with were important. If I were decorating for Christmas as I did last year while my husband was alive, there would be plenty of Swedish. And after all, there are plenty of evidences of Sweden in my family room and in my kitchen throughout the year.  Some of the Swedish items are mainly displayed in the pictured corner cabinet. I do not have a husband now to decorate for and I am out of town. (There are a few wreaths on the front windows, however.)

The year after my mother passed away, my father was in the hospital at Christmas. I went to the hospital cafeteria and got my lunch and brought it to my Dad's room and we both cried because Mom was gone. That ideal Swedish Christmas was forever gone when my mother passed away. Usually every year I try to have a Swedish Christmas, more or less.

My first husband was in a Miami hospital one Christmas following surgery. On December 26 I called his hospital room and he was out of breath; I called the hospital and rushed there. I was not allowed in his room while a team was trying to revive him. But he died of a heart attack--the day after Christmas. They say your "firsts", your first holiday, after your loved one dies will be hard. I know this, so this year I am at my brother's home because . . .

CHRISTMAS WITH 

DECEASED HUSBANDS 

ARE A MEMORY FOR ME NOW. 

Fortunately I have wonderful, welcoming family in Huntsville, Alabama and have spent maybe a dozen Christmases with my brother's family over the years. My niece and nephew have their own families now and I love seeing their children that live nearby.

I have asked my family what they want if I pass away.

"We want the Swedish decorations," they say. 

I am happy to pass these on. I realize that I have had more Swedish Christmas traditions than the average home in the actual country of Sweden. 

Jessica Lidh writes:HERE: 

For decades, my family has celebrated Christmas the same way, every year. I grew up listening to my grandmother tell me, “This is how the Swedes do it, how your relatives did it. So this is how we do it.” It didn’t really matter to me that my grandmother is actually a second-generation Swedish-American and not truly Swedish. (In fact, my closest relative to celebrate a legitimate Swedish Christmas would be my great-great-grandparents, who came to America in the late 1800s.) What mattered was the fact that we were replicating the traditions and customs of my ancestors, my roots, my people. 

This is how my family celebrates Christmas. On Christmas Eve, we have dinner, complete with Swedish meatballs, lingonberry preserves, ham and Swedish prayer followed by an evening service at my grandparents’ Lutheran church. On Christmas morning we open presents from Santa, and eat a Swedish brunch of potatiskorv (potato sausage) and äggröra (egg gravy). 

We saw the new movie "Annie" here in Huntsville and I cried at the end. I do not know why I cried:  is because I am a widow that I cried, or if it is because I was happy that Annie found a new home? Tears of a widow are complicated. I think of the Christmas song, I'll Be Home for Christmas, and I guess home for me might be  Huntsville, Alabama--not Plant City, Florida. I expect I will move to Huntsville sooner or later.

I prepared for this Christmas. I sent out greetings early. I mailed gifts early and even mailed some of my clothes there so I didn't have to pay for extra luggage on the flight. But it's not just one day, Christmas, but every day I am glad that I have a Christian faith. 

JESUS ENTERED OUR WORLD 

TO TEACH US HOW TO LIVE 

AND HOW TO DIE WITH CONFIDENCE. 

Hugs and Merry Christmas,
Carol

Saga Twenty-One

We spend Christmas Eve at Sally and Jake's church (since we don't have a Christmas eve service) and then went out to Dennys' with Sally and Jake for some Red Velvet Puppies/pie and decaf. My husband didn't remember trying on the great shirt I got him several months ago, and so it was a surprise gift.

Christmas morning we went to our church's regular worship. Many of the church family had their lunch at church and stayed there all day.  We went to my husband's daughter's home at 2 PM. There was another family member with dementia there and I spent time with him as if he didn't have dementia. So important.

Emotional eating when your husband has Alzheimer's. Dolores has lost weight and I am now dieting and losing. You can get to all kinds of programs for weight loss on the Internet. I chose Weight Watchers where I am a Life-Time member, not having to pay or attend all meetings. Weight Watchers has a great new program for 2012 called Point Plus 2012 and has on online program, excellent for caregivers who can't get out to a meeting. My meeting is 7 AM Saturday mornings--a better time for my husband to have me gone than an evening. Now this has meant for me what when my husband wants ice cream, as he often does, I don't have any. I think of my doctor's words to me,

"Carol, if you don't lose some weight and exercise,

you won't be able to be your husband's caregiver.
Forget the ice cream."

All the motivation I needed.  Plus people always ask us caregivers, "What are you doing for yourselves?" I am attending a Weight Watcher's meeting, and UGH, taking classes on counseling.

When people ask us what they can do for us caregivers, increasingly we need to say,  "Can you help me by scheduling time with my husband?" so that I can do something for myself. However, this is not needed yet as I can leave him at home with our devoted dog and he can call me on his cell. There will come a time when this won't work.

Sally really needs this time away from Jake, however. Recently he kept criticizing her driving and she told him it wasn't necessary and please stop. Well, Jake said I am getting out of the car then. He did and she saw where he went. She parked the car and then caught up with him and told him we need to go into Best Buy. That worked. I gave her this idea, to keep talking while she drives with him in the car and don't let him get a word in. Say things like, I see that car and I am preparing to stop. So far she  this tactic is helping his obsession about her driving and his not being able to drive. You just gotta deal with the husband's obsessions, one and a time.

When I have the time, I read a lot of Christian blogs and take especial note of counseling blogs since I am working on a seminary degree in counseling. These blogs aren't talking to caregivers, who one day may not even be able to attend a worship service. I am starting to be more vocal when I comment on those blogs that our churches need to minister to caregivers and those who have dementia. When that happens for me, fortunately, my church has Skype and I can listen from home. The blog that comes the closest to ministering to caregivers is Practical Shepherding.  This blog has categories for ministry to widows for example. I mentioned this need on another blog and got this response:

Carol, That is a huge area of counseling caregivers for those who are aging and experiencing physical and mental difficulties. Plus, counseling the aging...retirement, adjustment, loneliness, purpose, etc. Bob

Please, bloggers, pray for Sally and Jake. Also for Dolores who is facing putting her husband in a facility--heart wretching for this lovely lady, who is usually so positive. And have a Happy New Year. We are again spending an early New Year's Eve with Sally and Jake at our house, playing games, if it will work, with our husbands. I am serving a salad with chicken, but others can also have bread and ice cream. For the Southern New Years Eve with coconut oil go to this earlier site at the right.

50 Lessons from Old People

To celebrate growing older, Regina Brett (now over 90)  once wrote the 45 lessons below that life taught her. She also added friends are the family that you choose. Some of those lessons are too late for me now. However at age 67 I am adding # 46-50, just for good measure.
1. Life isn't fair, but it's still good.
2. When in doubt, just take the next small step.
3. Life is too short to waste time hating anyone. Change the way you think.
4. Your job won't take care of you when you are sick. Your friends and family will. Stay in touch.
5. Pay off your credit cards every month.
6. You don't have to win every argument. Agree to disagree.
7. Cry with someone. It's more healing than crying alone.
8. Release your children when they become adults; its their life now.
9. Save for retirement starting with your first pay check.
10. When it comes to chocolate, resistance is futile.
11. Make peace with your past so it won't mess up the present.
12. It's OK to let your children see you cry.
13. Don't compare your life to others. You have no idea what their journey is all about.
14. If a relationship has to be a secret, you shouldn't be in it.
15. Everything can change in the blink of an eye.
16. Take a deep breath. It calms the mind.
17. Get rid of anything that isn't useful, beautiful or joyful.
18. Whatever doesn't kill you really does make you stronger.
19. It's never too late to have a happy childhood. But the second one is up to you and no one else.
20. When it comes to going after what you love in life, don't take no for an answer.
21. Burn the candles, use the nice sheets, wear the fancy lingerie. Don't save it for a special occasion. Today is special.
22. Just because you believe you are right, doesn't mean you are. Keep an open mind.
23. Be eccentric now. Don't wait for old age to wear purple.
24. The most important sex organ is the brain.
25. No one is in charge of your happiness but you.
26. Frame every so-called disaster with these words "In five years, will this matter?"
27. Always choose life.
28. Forgive everyone everything.
29. What other people think of you is none of your business.
30. Time heals almost everything. Give time time.
31. However good or bad a situation is, it will change.
32. Don't take yourself so seriously. No one else does.
33. Believe in miracles.
34. Your job is to love your children, not choose who they should love.
35. Don't audit life. Show up and make the most of it now.
36. Growing old beats the alternative--dying young.
37. Your children get only one childhood.
38. All that truly matters in the end is that you loved.
39. Get outside every day. Miracles are waiting everywhere.
40. If we all threw our problems in a pile and saw everyone else's, we'd grab ours back.
41. Envy is a waste of time. You already have all you need.
42. The best is yet to come.
43. No matter how you feel, get up, dress up and show up.
44. Yield..
45. Life isn't tied with a bow, but it's still a gift.

ADDED BY CAROL

46. This life is not all. We have eternity and need to put that in perspective. (like # 26 and #42)
47. Coconut oil is good for a lot that ails ya.
48. Stop kvetching. Rejoice.
49. Meditate on Scripture and good books and pray about every little thing.
50. Enjoy your holiday for what it is. It doesn't have to be perfect.

Thanksgiving Week

Read Sunday morning from Psalm 118:19-21, 29 NLT

Open for me the gates where the righteous enter,

and I will go in and thank the LORD.

These gates lead to the presence of the LORD,

and the godly enter there.

I thank you for answering my prayer

and giving me victory. . . .

Give thanks to the LORD,

for he is good! His faithful love endures forever.

• Love going to church today in a few hours. So does DH. We bring our lunch and eat together after the worship service. Then we have a counseling class. DH listens while I take notes. I will be finishing up a counseling degree in the next several years. My current paper will be on "Dying Well".
• We are not going to be camping with that group. A call was made to say we weren't accepted. Both DH and I are at peace with this (although DH might be hurt). We still can camp with Sally and Jake. Sally and Jake are still in the group, but Sally speculates that it is because this group didn't want another person with Alzheimer's.
• By book is now an eBook on Barnes and Noble. Go to bn.com and purchase at $7.69 for your iPad, computer or Nook. Just type in "Getting Off the Niceness Treadmill", the name of the book.
• I went to a Christian Writer's Conference all day in Orlando Saturday, November 19th. Thanks to Sally and Jake for taking DH to lunch while I was gone. DH is able to stay home by himself, but that sure was wonderful that they thought of this. Sally and I are thinking about introducing our husbands to senior day care, which might work if they go together. These men always have so much fun together. Sally increasingly has to be with Jake and this may help if our husbands can both hang out at a senior day care; they love telling each other the same things over and over.
• Obsessing. DH now obsesses about that camping group. Jake obsesses about not being able to drive and DH made the mistake of driving when the four of us were together recently. Sally told me later, that it really didn't matter. Jake obsesses about how unfair it is that as a man he can no longer drive. DH often comments on Jake and genuinely cares for him.
• DH genuinely cares for me. I love him also.
• I have a week off--no subsituting the week of Thanksgiving. We will be with some of DH's extended family on Thanksgiving. I have a week off to de-clutter, clean. and decorate for Christmas.
• Most of my Christmas shopping is done. My creative gift this year for birthdays/Christmas is not a quilt like the last two years. This year it is Scripture highlights I have been working on each day. These highlights are printed in a binder for selected people. One family member didn't want it because he said it is "too preachy"--so he is getting an iTunes gift card. Other family members are excited about a binder of Scripture highlights. This is not necessarily a cheap gift for our budget, as I have had to buy additional printing cartridges, binders and mail the binders. The binder shows my excitement for God's word and how it sustains me each day.

Saga Thirteen



Two Signs from Cracker Barrell
Cherish Each Day
Family Is Everything

My husband's family couldn't come for Easter at our home as they had some other years, and so we headed to my family in Huntsville, Alabama. For this trip which was over 700 miles DH drove about 2/3 of the way there.

When we returned home, we did it in stages. Monday after Easter we traveled to the Birmingham area where we were guests at an author's home that I have been corresponding with. With DH there we talked openly about Alzheimer's. DH was most charming in the conversation.

Tuesday we left for Plant City. Hubby drove from Birmingham to Montgomery, a difficult trip because of wind, construction and traffic. I thought he managed the driving well. When we got to Montgomery, he said he didn't want to drive anymore and I finished driving that day as we returned home. That next day the tornado would devastate Alabama. Everyone I know in Alabama is safe, although my brother and family do not have electricity. CHERISH EACH DAY especially when your husband has Alzheimer's. You never know what a day will bring.

Also that next day (last Wednesday after our Easter trip) my husband had surgery on his scalp for basal cell carcinoma--about 12 stitches. Pray that it heals and that the dermatologist got all of the cancer. After this surgery he asked why his head hurt and I had to remind him that he had surgery. When all is said and done a going-bald husband will not be able to hide this scar.

Jake and Sally came over Friday night for pizza and a game of Mexican Dominoes. We just played up to number six and Jake won, much to his surprise.

Recently Sally had the Byrd Alzheimer's Institute have a meeting with Jake's adult children. My pastor has also been in touch with DH's adult son. Meanwhile Sally and I get so much support from one another. Jake had quite an episode on Friday and she was able to unload to me when they came over Friday night.

My friend B.W. who doesn't officially follow this blog but read the last post, remarked in an e-mail  to me that she would like the kind of marriage that DH and I have. I e-mailed back to her:

It’s a commitment—for better, for worse, in sickness and in health. At first when I realized the Alzheimer’s I sort of withdrew from [DH] emotionally, realizing I would be a widow AGAIN. But he would be lonely if I did that and he daily tells me he loves me. Many caregivers don’t give the support to their family members that they need and then the patient becomes angry. I keep learning a lot about this.

I am about to go watch the Larry King special on CNN shortly. Hubby has gone to bed. He usually monopolizes the TV, but I get to watch this Alzheimer's special myself. Just in case I fall asleep, though, I am taping it. See Larry King Special .